Second opinion ✅

I probably should’ve included this with my post last night, but I was too tired to write anymore and my “thinker” quits working at a certain time every night. That time being when Reesey Girl goes ni-night. My brain can finally take a break from all the chaos and insanity of the day… and ahh, just breathe.

And so did I mention I wasn’t too impressed with my first doctor? Well, I wasn’t. At all. Waited for 45 minutes in this tee tiny room all for him to come in, ask for my history (which I had just spewed out like word vomit on the ever-too-familiar new patient paperwork.) 🙄 I really wanted to ask “So, what exactly do you do before you walk into a new patient’s room, sir?” (Seriously) I felt super rushed, like he had better things on agenda.  (Side note: I went to this first appt by myself bc I was quite sure it was only a consult. Maybe going to schedule a scan or something, but that would be at a later date. So no need for Tommy to miss a day of work just for this. This little miss can hold her own. 💁🏻)

Just as I thought – I was scheduled for an MRI within the week & follow-up visit 2.5 weeks later. 2.5 weeks?! Really?! That seemed awfully long, but Tommy assured me if anything were terribly terribly wrong, that they would surely call us. Thank you, God, for my amazing husband who knows just the right words to say & when to say them and how to calm my crazy when I really just want to go all beast-mode on someone. Because we ALL know that just doesn’t need to happen. 

Fast forward to this past week: Tuesday, the 23rd— 

After some research, my sweet, beloved Nanie {who I don’t know if I can ever live without} & I found yet another neurosurgeon (at The NeuroMedical Center) who specialized in tumors of the pituitary gland. He was also listed as one of the world’s top neurosurgeons. Hey, I FINALLY found my guy! If I’m having brain surgery, this dude is my number one. I was also told this by a few other friends who knew of him. All things checked out – I’m going to see this guy & see what he has to say. 

Turns out Dr. #1 has already discussed my case with Dr. # 2 so he’s pretty familiar with it. As he walks into the room, he asks who my endocrinologist is right off the bat. When I say I don’t have one, but ask for a recommendation – his response: uh, an endocrinologist. At this point, stick a fork in me, I’m done.  I have no time for rudeness. This is my health we’re talking about. I have a baby who needs me to give her 110% of all that I have. I have a husband, who {I feel} thinks I’m broken. What if he thinks he has a broken wife? Because I’m too tired to care for our daughter all the time. My migraines are so deep, on occasion, that I have to cover my face/head with a blanket while our Reesey Girl plays right next to me on the couch – within arms reach so I can still touch/hear her even though I can’t see her. I have too much life left to live. 

So, since these guys are so knowledgeable & ya know, well, brain surgeons… Do they automatically get the “I’m better than you” card? Nope, not from me. Not in this lifetime & certainly not in the next. 

Geez Louise! It’s almost 1 AM. Since when have I started staying up so late. Bedtime for this mamacita. I guess I’ll be drinking 7 cups of coffee before service in the morning to put me into drive. 

xo, 

Maegan 

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Tumor, you say?

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Yep, you read that right. TUMOR. Brain tumor, to be exact. ANOTHER brain tumor to be even more exact.

That was what my MRI results showed & what the neurosurgeon confirmed. Although, he was pretty matter-of-fact. No sugar-coating going on in that room. Yep, you have a tumor. It’s on your pituitary gland. You have 2 options here: 1) just let it hang out. Keep experiencing all these dreadful symptoms (but ya know, if they’re not bothering you too bad…🙄) and conduct yearly MRI’s to “watch” it progress & eventually have surgery when it starts making you go blind. Or 2) have surgery to remove it. Umm, scuse me? But what about just removing it from the get-go? There’s no sense in waiting til I go blind, then I could care less.

The actual procedure is called a craniotomy, a procedure in which they go through my nose to break a bone in my skull to expose my tumor, pull it out through my nose, and there ya go. Doesn’t sound too horrible, but after all, it IS brain surgery. Positive note: I get a 2 for 1. Since they’re going through my sinus cavity to get to this thing, they will surely clear those boogers (literally & figuratively) out & I won’t need that surgery – like ever. Downside: I’ll probably look like a clown for a while AND they encourage you NOT to sneeze. Ahem, really?! I totally get that & realize why but how in the Holy Land am I going to be able to stop myself from sneezing?? Because I sure as hell am NOT going to pinch my nose like I normally do.

Ok so, that was that. Back to the doctor’s remarks–

I’m gonna schedule you for a follow-up in a month so it can really sit & sink in (more like fester) – and then you tell me what you want to do. This is pretty much how it was handed to me. Or how I felt that he presented it to me anyway.

Umm, no thanks. I don’t even want this thing. Can I return it? Maybe even do an exchange for store credit? Something… Nope. It was all mine. Geez, how lucky am I?! Two brain tumors in 1 lifetime. BINGO – I must have hit the jackpot, right?! Just without the moo-lah.

First, let me not leave you wondering (or is it wandering – I stay confused about those two) about the “brain tumor numero uno”.  Not to worry, I’ll be brief.

I had just turned 6. Like 6 years old. Like my Reesey Girl in 4 years. I can’t imagine the devastation my parents went through. It was categorized as an astrocytoma of the cerebellum (big fancy, eh). The cerebellum is located at the back of your head. The headaches, I can still remember to this very moment, as being excruciating, so bad I would black out & not be able to see at times. It didn’t discriminate when/where these black outs would take place. Sometimes I would be walking to get a sip of water in the middle of the night & BAM – black out! Fall to the ground & have to call for my mama & daddy to come get me. All at 6 years old. I was still a baby in my now-adult eyes. The headaches were so terrible that some nights I would just sleep sitting up because of the pressure. The pressure the tumor was putting on my brain was awful, completely awful. Sitting up seemed to be the only thing to give me relief. Oh wait, I said I would be brief huh?  So — fast forward, I had 20% of this monster removed at OLOL & the remainder taken out at St. Jude. I also had a shunt placed there to alleviate any fluid buildup from my brain. Shunt – still intact & chuggin along just fine.

So, for those interested — this is where we stand as of now. I promise promise promise, I’m not intentionally leaving anyone in the dark after appointments. 1) I spend literally most of my day there on the day of. 2) I’m exhausted when I get home to the point of just falling over & crying. Bc once I pick up Reesey Girl, she has had her nap & is in 5th gear. Not the case with Mama. (One of unexplained side effects, blah) 3) Oh, do you know I have a crazy active toddler who demands Mama’s attention with her 8,764 babies ALL DAY ERR-DAY?! Ask Tommy’s mom (our beloved Mimi), she can vouch. 😂 4) Please, please, please – do not hesitate to call or text either of us, anytime. (Also know, we are totally fine.) Anybody who knows me, knows that I’m an open book. I will tell all. So please, don’t be afraid of getting in touch for fear that I’m upset, etc.

This is all part of God’s plan for me. He knows the outcome of this already. He’s the ultimate Healer & I’m placing my full trust in Him.

Ok – I’ve rambled on enough for tonight. It’s late & I can hear Tommy sawing logs in the next room. Guess it’s time for me to go join him, or I’ll need 6 cups of coffee to do the trick tomorrow morning.

xo

-Maegan